THE voices of some of Australia’s biggest bands are coming together to support a tough little girl and many like her.
The 2018 Tough Tilly Day is set to rock the Port of Echuca on Saturday.
Last year’s event brought about 800 people and organisers are expecting more this year.
‘The Voices’ are headlining the concert which features Jason Singh of Taxiride, Dale Ryder of Boom Crash Opera, X Factor winner Reece Mastin and Katie Underwood from Bardot.
This year, the special guests are Taylor Sheridan plus DJ Alley Cat.
The annual event raises money for sufferers of Epidermolysis Bullosa or EB which is a rare genetic skin condition with no cure.
Tilly Wilkes, who the day was named after, is one of the sufferers who battles against her skin every day.
But the six year-old doesn’t show it.
Tilly’s dad, Corey, said she started school this year and has excelled.
‘‘She’s getting to the age now where she understands what she needs to do,’’ he said.
‘‘When she was born, we just took it upon our stride saying okay this is the card we have dealt, let’s deal with it.
‘‘But then we realised we have the opportunity to make a difference.
‘‘The space of genetic science is really exciting and while there isn’t a cure for EB yet, it is well on the way.’’
Taxiride’s Jason Singh, who is a very close family friend, said he couldn’t picture helping out the family any other way.
‘‘I went to school with Tilly’s mum Kelly and we have stayed in touch ever since,’’ Mr Singh said.
‘‘But I am doing the concert for Tilly and to raise awareness for all sufferers of EB.
‘‘Tilly is such a special little girl and is an old soul — she teaches me so much about life.
‘‘It’s such a great fun-filled night.’’
The Voices will play hit songs from the 70s to now, incorporating all age groups.
‘‘We will be singing all the hits of our respective bands as well as classic Australian songs,’’ Mr Singh.
‘‘It was such a huge success last year, we hope to top it this year.’’
The night starts at 6.30pm at the wharf.
It is BYO nibbles and chairs with drink at bar prices.
There are limited tickets available at $60 per adult and $20 per child and can be purchased from ebresearchfoundation.org/events/
All proceeds go to the foundation for further research.
If you would like make a donation to fund vital research into a cure for Epidermolysis Bullosa - the worst disease you’ve never heard of — please go to www.ebresearchfoundation.org